The Paul Ruby Foundation for Parkinson's
A Ride to find a cure for Parkinson’s
Upon being diagnosed with early-onset Parkinson’s Disease, Paul Ruby created this Foundation with a mission to 1) find a cure for Parkinson’s, 2) improve the quality of life for those afflicted and 3) create awareness about Parkinson’s. To date over $500,000 has been raised to pursue this mission.
The Paul Ruby Foundation has partnered with the Northwestern Parkinson’s Disease and Movement Disorders Center (www.parkinsons.northwestern.edu) recognized by the National Parkinson Foundation as one of 38 worldwide Centers of Excellence.
It is the aim of the organizers to enable 100% of all registration fees to go directly to the foundation. All attempts will made to cover the operating expenses for the event through private and corporate sponsors. In addition to the registration fee and to meet the fundraising goal, riders are encouraged to obtain donations from family, friends, business associates etc.. Any rider who raises a minimum of $300 in donations will be awarded a Sub5 Jersey. Note that jerseys can not be purchased and must be earned. All moneys donated qualify as a tax deductible gift to a registered non-for-profit charity.
The following tools will help you meet your personal fundraising goals when seeking the support of others:
If you have questions about effective fundraising, please contact Jorie Parwani (email@example.com)
Parkinson’s Stories … why we care:
Mark Ackerman, Sub-5 Ride participant since 2011
Let me tell you a little bit why this event means so much to me. Back in 2011 I was looking for a source of motivation to help me get back into cycling after taking four years off due to both a setback due to an injury and work obligations. You’ll recall that large pill we swallowed at the office back in 2007. I had little time for cycling back then because we absorbed an entire department by hiring 3.5 people only. Wild stuff, but we succeeded, so the long hours were worth it.
In any event, in February 2011 I ran into a nice guy representing the Sub-5 Century (The Sub-5 Ride’s name at the time) named Paul Meier. It just so happened he lives in the same suburb that I do. He described the event to me, and the whole thing just clicked. I was hooked at the start. Not only did it sound like a really challenging event, but the charitable aspect of the event got my attention, as I have witnessed family members suffer from Parkinson’s. Anyway, I participated in the event in 2011 and liked the event and the organizers so much, I joined the Organizing Committee in 2012. I either joined or I was drafted; I simply can’t recall… I see this event being part of my cycling life for years to come. Here’s what the event is like:
The featured event of the Sub-5 Ride for Parkinson’s is a timed, 100 bike ride completed as a team. You probably know the drill—the riders form a pace line and take turns taking the wind at the front. The idea being that the team as a whole can ride faster than a solo rider can. Let me tell you, once you get humming along, it’s a blast. For this year, we are enhancing the Recreational Rider routes for those who are not up to riding 5 hours @ 20+ mph. All riders are encouraged to raise funds. Last year I raised about $1,300.
Jim Duran, Sub-5 Ride participant since 2010
This is a report I wrote up for my sponsors to let them know about what occurred on this sponsored ride. Note – it was late, so read at your own risk. Click http://tinyurl.com/JimDuranSub5 for Jim’s story.
Paul Meier, Sub-5 Ride participant since 2010
“A rider’s personal account of his Sub-5 Ride experience”
Click http://pmbiker.blogspot.com/2010/09/sub5century-challenge.html for Paul’s story
Greg Layer, Sub-5 Ride Volunteer
The following is my story as told by me in the 9/27 service at the Boulder Valley Unitarian Universalist Fellowship church. Click Greg Layer’s Story .